Another Day/Another Doctor's Visit
My husband Brad (the Lyme/Babesia patient), had a doctor's visit today. Anyone who has this disease knows how after a long while, you get to the place you just do not want to ever walk through the door of a doctor's office again. Simply because you are just tired of the entire ordeal. Tired of waiting and waiting in the lobby, waiting in the room,
waiting for blood tests or the results of the tests. Tired of doctors looking at you and saying we do not see anything wrong with you. Thus, we cannot help you.
This time was a wee bit different. Brad's hearing has been waning now for a couple months. Today, after the audiology exam they found significant hearing loss in one ear and a small amount in the other. They labeled it neurological hearing loss. About all she could do is well; you guessed it-NOTHING!
Our Lyme Literate Doctor has treated people who have gone both blind and deaf with this disease. As well as unable to walk and the list is quite long. We were encouraged to meet a married couple who both has Lyme Disease, the wife was both blind and deaf and couldn't walk. But, now is able to see, hear and walk. The aggressive antibiotic therapy plus the herbs was the answer for her.
Not even a month ago, Brad's vision was attacked. He woke up with fuzzy vision, eventually one eye was totally blurry. His right hand went numb on him too. Not knowing what to do and also encouraged by our L.L.Dr.; we went to our local M.D. We waited and waited to be told there was ...(ready) NOTHING they could do. What was interesting, once they knew he was diagnosed with Lyme, she didn't even bother to run a scan on Brad. Recall from past posts this all started after a knee surgery that developed a blood clot that hospitalized him for almost two weeks. Thus, the probability of him having another one is pretty good.
After being told about his hearing, tears came down our face. We have read a lot by now, we have listened to our Lyme Lit. Doctor with her words of knowledge, watched Under Our Skin and witnessed others face serious illness due to Lyme. With Brad not getting better now after 9 full months of antibiotics; we are feeling quite dismayed. But, strangely feel a deep peace (which we know is from GOD). After the tears, we both looked at each other and said; "All is well." Then, Brad looked at me and also said; "Well, here is another thing God is going to take care of."
This all is just too heavy for us to bear. For anyone to bear. Only Jesus can carry us; looking back at all we personally have faced through out the years; this knowledge has given us much rest and resolve. [R & R]
Allow us to encourage anyone out there facing this disease.
1st: Don't face this alone. My dh has a quiet personality anyways, but he is a very strong minded man. As he has gone through this, I have watched him sink more and more into himself. It was separating him from me, his children and his God. I prayed and prayed. Well, the Lord really touched his heart and he is much better.
2nd: Total surrender! Don't carry this. When you are in constant pain this is not easy. But, if you cannot do anything but just say the Name of Jesus...whisper it, cry it...believe in this Name. I promise You will then feel His presence so strong because your own spiritual nature will be 'in-tune' to His Lordship.
3rd: Keep the Hope at the forefront of your entire mind, soul and being. This is where so many patients loose heart. They give up, they stare at all the medications; they remember how active they once were, they see their families and feel left out. But, know Hope is life, Hope is a healer, Hope is the future and Hope is for now. I am telling you right now...HOPE IS JESUS! Him and him alone, not man...including you-Hope is Jesus being the Lord of Your Life. Ask my husband, he will tell you this. Ask me? My story is there too-I am in remission.
4th: One day at a time. Enjoy every segment of the day God has given you. Being able to get out of bed. Be with a loved one. Shower, read; drink your coffee or tea and so on. Tonight, our family of 5 was so silly; we just simply sat in our living room being absolutely goofy. Laughing at the most simplest of things. Ahhhh, isn't that nice!
Hang in there my friend. When you yet have another doctor's appointment, remember this blog-article. Though we are tired of waiting; say: "All is Well" and go forward one step at a time.
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Brad's New Med's:
Sumatriptan 50mg
Clindamycin 300 mg 2-3X a day
Minocylcine 100 mg cap teva 1-2X a day
Hydroxychloroquine 200 mg Ran 2 a day
Amitriptylin 25 mg tab Sand 1 at bedtime
These have seemingly been much better on his stomach. There have been new herx's that have arisen:
Eyes going fuzzy & numb hand- but he is able to function a little better sometimes.
The herx's (and other side affects) he does have:
heart pain, neck-tension pain, joint, migraines, no taste buds (all the time), dizziness, concentration, depression, moodiness, breathlessness, skin rashes, bloating, high blood pressure, high pulse rate. Unable to walk distances past 50 feet.
If you have these, it might be good to locate a Lyme Literate Specialist near you.
